Conferences

Conference posters and papers presented by the Genomics Policy unit are listed below.




Conferences 2014
Poster: Morgan R.R, Kirk M, Yu J, Lancastle D, Roberts R, Jones L.H, Gristock A, Jones A, Doughton K, Bevan J. Walking in their Shoes: Building an effective stakeholder partnership for the creation of an evidence-based patient story resource to explore issues around the impact of place on patient wellbeing. Cwm Taf University Health Board Research and Development conference, University of South Wales, 27 November 2014

Poster: John, S, Kirk M, Stuart-Hamilton, I, Tonkin, E, Ralph, N. Exploring women’s understanding of Down syndrome screening information: the importance of women’s cognitive ability. Cwm Taf University Health Board Research and Development conference, University of South Wales, 27 November 2014

Paper: Kirk M. An interactive approach to prioritise the evidence base for genomics in nursing. Sigma Theta Tau International Honor Society 2nd European Regional Conference, Gothenburg, Sweden, 16-18 June 2014




Conferences 2013
Paper: Kirk M. Walking in their Shoes: A feasibility study of storytelling in situ to promote empathy amongst health professionals towards the impact of place on patient wellbeing. Cwm Taf Health Board Research and Development conference, University of South Wales, 26 November 2013

Incoming Presidential Address: Kirk M. International Society of Nurses in Genetics 25th Annual Conference, Bethesda, MD, USA, 2-4 October 2013

Paper: Kirk M, Tonkin E Prioritising the evidence base for genomics in nursing. International Society of Nurses in Genetics 25th Annual Conference, Bethesda, MD, USA, 2-4 October 2013

Poster: Andrews V, Kirk M, Tonkin E, Lancastle, D. The role of leadership in the uptake of genetics: Characteristics of nurse adopters and nurse opinion leaders. International Society of Nurses in Genetics 25th Annual Conference, Bethesda, MD, USA, 2-4 October 2013

Paper: Yu J & Saltus R Caring for older women from black and minority ethnic backgrounds with dignity: Service providers’ perspectives. WISERD Annual Conference, University of South Wales, Pontypridd, 26 June 2013

Paper: Madden K Let’s Talk About Genes and I Don’t Mean Trousers: Exploring cancer and genetics with school children in South Wales. WISERD Annual conference, University of South Wales, 26th June 2013




Conferences 2012

Paper: Kirk M, Yu J, Tonkin E, Lucey D, Skirton H. A global perspective of antenatal screening practice for genetic conditions: the role of midwives and other health professionals. International Society of Nurses in Genetics 25th Annual Conference, Philadelphia, USA, October 2012.

Workshop presentation and poster: Kirk M, Simpson A, Llewellyn M, Tonkin E, Cohen D, Longley M, Edwards A. The role of the Cardiac Genetics Nurse in Inherited Cardiac Conditions (ICC) Services: impact on the quality of the patient and family experience. European Meeting on Psychosocial Aspects of Genetics, Nurnberg, Germany, June 2012

Poster: Madden, K., Iredale, R., and Taverner, N. (2012) Let’s talk About Genes and I Don’t Mean Trousers: A feasibility study exploring the acceptability of discussing cancer and family history with school children in South Wales. Children and Young People’s research network & Academic Paediatric Association Joint Annual Conference, 5th October, 2012

Paper: Kirk M, Morgan R, Tonkin E, Skirton H, McDonald K. Using Google Analytics to monitor and optimise usage of a genetics education website developed for the nursing profession. Sigma Theta Tau International European Conference, Cardiff, July 2012.

Kirk, M., Morgan, R. & Tonkin, E. STRICTLY PATIENTS – Listening to Improve; Celebrating Excellence. Telling Stories Understanding Real Life Genetics. Video showcase, Chief Nursing Officer for Wales 2012 Showcase Conference, SWALEC Stadium, Cardiff, 15 March, 2012



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Conferences 2011

Kirk, M. An interactive public event exploring narrative and illness, including a presentation about Telling Stories. Poets encounter Medicine. University of Glamorgan. Pontypridd, 6 June 2011.

Kirk, M. Delivering effective education in genetics for health professionals. International workshop, University of Plymouth, Plymouth, 28 June, 2011

Poster: Kirk M, Morgan R, Tonkin E, McDonald K, Skirton H Global engagement with an online genetics education resource: using Google Analytics to evaluate visitor activity and behaviour in countries developing genetics-genomics within nursing practice. The 2nd International Genomics Conference, Cardiff, 13th-14th September 2012 Poster prize winner.

Morgan, R., Kirk, M., Skirton, H., Yu, J., McDonald, K. & the Telling Stories Understanding Real Life Genetics Project Team Growing up with genetics: Young people’s experiences of living with a genetic condition. Poster presentation, Children and Young People Research Network Wales Conference, SWALEC Stadium, Cardiff, 3 November, 2011

Morgan, R., Kirk, M., Skirton, H., Yu, J. & McDonald, K. Engaging and working in partnership with storytellers to develop a genetics education resource for health professionals. E-poster presentation, Practising Community-Engaged Research in Wales Workshop, Wales Millennium Centre, Cardiff, 31 October 2011

Yu, J. & Madden, K. Engaging young people. Workshop, Engaging Wales Conference, SWALEC Stadium, Cardiff, 19 October 2011



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Conferences 2010

Masterclass workshop: Morgan, R. New media narrative as a powerful tool to engage and educate healthcare professionals; Telling Stories Understanding Real Life Genetics. Association of Healthcare Communications and Marketing, Sutton Coldfield, Birmingham, 5–6 October, 2010

Master class session: De, D. Maximizing impact on the outcome for patients with sickle cell. Sharing Innovation, Delivering Solutions Conference, organised by Florence Nightingale Foundation, QE2 Conference Centre, London, 9-10 March, 2011

Workshop: Kirk, M., Tonkin, E. & Morgan, R. The Telling Stories, Understanding Real Life Genetics education website, Workshop, Storytelling and Health – voices of experience symposium, organised by Storyworks and Velindre Cancer Centre, Cardiff, 14 May, 2010

Keynote international panel session: Kirk M. (Chair and paper). Ethics at the Interface Between Genomics and Health. Equity of Access to Genetic Services, International Society of Nurses in Genetics. 23rd Annual conference, Dallas, USA, October 2010

Paper: Kirk, M., Tonkin, E., Simpson, A., et al. Developing the nursing role: Inherited cardiac conditions (ICC) services utilising BHF Cardiac Genetic Nurses: an evaluation. British Society for Human Genetics, University of Warwick, Warwick, 6-8 September, 2010

Paper: Kirk, M., Tonkin, E., Skirton, H., Longley, M. & McDonald, K. An interactive consensus building approach to reviewing a genetics competence framework for nursing. International Society of Nurses in Genetics. 23rd Annual conference, Dallas, USA, October 2010

Paper: Madden, K. (2010) Engaging young people in a longitudinal research project. Researching Young Lives conference, Limerick, 30th April

Paper: Madden, K. (2010) Engaging Young People in Research: The GAMY Project. Beacon for Wales & Vitae SWW Hub: Exploring the What, Why and How of Public Engagement. Cardiff, 6th July

Paper: Taverner, N., & Madden, K. (2010) Engaging young people in longitudinal research about genetics and health. International Youth Work and Studies Conference: Mind the Gap. Glasgow, 7th – 9th September

Poster: Kirk, M., Morgan R., Tonkin, E. & the Telling Stories Understanding Real Life Genetics Project Team). Using Google Analytics to evaluate Telling Stories Understanding Real Life Genetics website activity. British Society for Human Genetics Conference, University of Warwick, Warwick, 6–8 September, 2010

Poster: Kirk, M., Tonkin, E., Skirton, H., Longley, M. & McDonald, K. An updated genetics education framework for UK nurses. British Society for Human Genetics, University of Warwick, Warwick, 6-8 September, 2010

Poster: Kirk, M., Tonkin, E., Llewellyn, M., et al. Cardiac Nurses taking on genetic activities: models for other nursing specialties in mainstream services? International Society of Nurses in Genetics. 23rd Annual conference, Dallas, USA, October 2010

Poster: Kirk, M., Tonkin, E. & Edwards, A. Supporting education and training across Wales: the role of the NHS National Genetics Education and Development Centre’s Nursing Professions Programme, CNO for Wales Showcase Conference, Cardiff, 13-14 May, 2010

Poster: Yu, J., Madden, K. & Taverner, N. Sharing health stories on the Internet: Young people’s perspectives. Children and Young People Research Network Wales Conference, SWALEC Stadium, Cardiff, 4 November, 2010

Poster: Taverner, N., Madden, K., & Iredale, R. (2010) Debating genetics with young people: the GAMY Project. Association of Genetics Nurses and Counsellors Spring Meeting, London, 29th April

Poster: Taverner, N., Madden, K., & Iredale, R. (2010) Exploring Genetic Literacy with Young People: The Genetics and Merthyr Youth (GAMY) Project. European Meeting on Psychosocial Aspects of Genetics, Gothenburg, Sweden, 12 – 15 June



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Conferences 2009

  • Madden, K., Taverner, N., & Iredale, R (2009) Genetic Literacy and Family History: A Study of Young People in the South Wales Valleys. Poster presentation at the Children and Young People’s Festival of Participation in Research, Cardiff, 11th March.
  • Madden, K. (2009) The GAMY Project: An Overview. Oral and poster presentation at the Community University Partnership Programme Conference, Brighton, 2nd & 3rd April
  • Iredale R2, Madden K12. Engaging Young People With Genetics. Oral Presentation, British Science Association Science Communication Conference, London, 23rd & 24th June, 2009.
  • Kirk, M1 Association of Genetics Nurse Counsellors annual conference 2009
  • Kirk, M1 International Council of Nurses congress, Durban, South Africa 30 June to 4 July 2009
  • Kirk, M1 METI UK nursing simultation conference 2009
  • Kirk, M1 Arrhythmia Alliance Heart Rhythm congress, Birmingham 18-21 October 2009
  • Kirk, M1 United Kingdom Oncology Nurses Society annual conference, Brighton October 2009
  • Kirk, M1, Tonkin, E10, Lewellyn M, Longley M, Cohen D, Edwards A. Constructing a Framework to Evaluate Cardiac Genetics Services poster for the Second Cardiff Symposium on Clinical Cardiovascular Genetics 23-24 November 2009
  • Kirk M1 Tonkin E10, Llewellyn M, Longley M, Cohen D, Edwards A, Simpson A. Constructing a framework to evaluate cardiac genetics services.Second Cardiff Symposium on Clinical Cardiovascular Genetics 23-24 November, 2009.
  • Kirk M1, Tonkin E10, Morgan R4. Telling Stories: A source of clinical content for simulation development. Oral presentation ‘Simulation: In Pursuit of Competence’, The 3rd Annual UK Simulation in Nursing Education Conference. Pontypridd, Wales, June 24th & June 25th, 2009.
  • Owens S, Iredale R2. How, what and when to tell the children: Factors that influence parental disclosure of a child’s genetic test result. Poster Presentation British Society for Human Genetics, Warwick, 31st August – 2nd September, 2009.
  • Taverner N, Madden K12, Iredale R2. Influences on Young People’s Attitudes to Genetics and Health: The Genetics and Merthyr Youth (GAMY) Project. Poster Presentation British Society for Human Genetics, Warwick, 31st August – 2nd September, 2009.
  • Taverner N, Madden K12, Iredale R2. Influences on Young People’s Attitudes to Genetics and Health: the Genetics and Merthyr Youth (GAMY) Project. Poster presentation at the British Society for Human Genetics Conference, Warwick, 31st August – 2nd September, 2009.
  • Taverner N, Madden K12, Iredale R2. Influences on Young People’s Attitudes to Genetics and Health: the Genetics and Merthyr Youth (GAMY) Project. Poster presentation at the Children and Young People’s Research Network Annual Conference, Cardiff, 5th November, 2009.
  • Tonkin10 E Spoke at the Cornelia de Lange Syndrome International Conference, Brighton 22-26 July, 2009.
  • Tonkin, E10 Strategies to support the integration of genetics & genomics into nursing curricula: A UK perspective, International Society of Nurses in Genetics annual conference, San Diego 17-19 October, 2009.
  • Yu J6. Madden K12, Taverner N13. Engaging young people in an online focus group. Poster presentation at the Children and Young People’s Research Network Annual Conference, Cardiff, 5th November, 2009.



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Conferences 2008

  • Kirk, M1, Tonkin, E10 and McDonald, K3, Telling Stories, workshop, Story Telling for Change Conference at Expo 08, 2008, Cardiff.
  • Kirk, M1, Tonkin, E10, Skirton, H11, McDonald, K3, Williams, B and Summan, R, Working with users of genetics services to develop a web-based resource to enhance health professional education: real stories, real involvement, Nurse Education Tomorrow, 2008, Cambridge.
  • McDonald, K3, Cancer genetics referrals in Wales, RCN International Research Conference 2008, Liverpool.
  • McDonald, K3, Genetics one day at a time, Nurse Education Tomorrow conference 2008, Cambridge.
  • Tonkin, E10, Kirk, M1, Bennett, C and Martyn, M, Using patient stories in health professional education: addressing the needs of teachers and learners, workshop, West Midlands Workforce Deanery and the Centre for Research in Medical and Dental Education conference 2008, Birmingham.
  • Tonkin, E10, Kirk, M1, Bennett, C, Newton, R and Farndon P, A responsive approach to genetics education: promoting a confident and competent nursing workforce, Nurse Education Tomorrow conference 2008, Cambridge.
  • Tonkin, E10, Kirk, M1, Burke, S, Farndon, P, Bennett, C, Williams, B, McDonald, K3, Skirton, H11 and Summan R, Life isn’t like a text book: effective use of real stories within health professional education and training, Association for the Study of Medical Education (ASME) conference 2008, Prague, Czech Republic.
  • Tonkin, E10, Kirk, M1, Cooley, C, Bennett, C and Farndon, P, The continuum of genetics education and training for nurses in cancer care: a framework for all levels of practice, International Society for Nurses in Cancer Care conference 2008, Singapore.
  • Tonkin, E10, Kirk, M1 and McDonald, K3, Practice nurses and the business of genetics: referrals to genetics services from primary care and the role of the practice nurse, RCN International Research Conference 2008, Liverpool.
  • Tonkin, E10, Genetics in Cancer and Palliative Care – What do all Health Professionals need to know?, National Cancer Conference 2008, invited presentation, Liverpool.



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Conferences 2007

  • Kirk, M1, Telling Stories, Understanding Real Life Genetics, EuroGentest Network of Excellence conference 2007, invited presentation, Milan, Italy.
  • Kirk, M1 and Tonkin, E10, A strategic approach to preparing nurses for genomic healthcare and the global clinic, RCN Joint Education Forums’ 1st International Conference, 2007, Invited Paper, Brighton.
  • Kirk, M1, Tonkin, E10 and Birmingham, K, Ascertaining practitioners’ needs in genetics education: A novel approach to survey, RCN International Research Conference, 2007, Invited Paper, Dundee.
  • Palmer, P, De, D5, Jader, L, Liburd, T, Bashi, W, King, L, Cosh, H, Lester, N, Toghill D, Patel, S and May, A, Meeting Standards of Clinical Care of Children and Adults with Sickle Cell and Thalassaemia Disorders in Wales, Poster, British Haematology Society Conference, 2007, Bournemouth
  • Tonkin, E10 and Kirk, M1, Genetics in Practice: Views of Nurses in Non-genetic Specialties, International Society of Nurses in Genetics 20th Annual conference, 2007, Invited Paper, Bristol. Nursing and Health Sciences, 2007, 9(3): 236



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Conferences 2006

  • De, D5, 'Crisis’ in the Caribbean, 29th Annual Meeting of the National Sickle Cell Disease Program: Clinical Care, Research and Education Conference, 2006, Poster, Memphis Tennessee.
  • Kirk, KM1, Skirton, H11, McDonald, K3, Kaur-Mann, K7, Williams, B, Tonkin, E10 Telling Stories, learning genetics: Developing a web-based education resource to promote engagement in genetics amongst the nursing professions, 2006, Invited paper, RCN Joint Education Forums Conference, Cardiff.
  • Kirk, KM1 and Tonkin, E10 The NHS National Genetics Education and Development Centre: promoting competence across the nursing professions, 2006, Invited paper, RCN Joint Education Forums Conference, Cardiff. (Joint presentation).
  • Tonkin, E10 and Kirk, KM1, Current Provision, Future Need: Genetics Education within Pre-Registration Training for Nurses, Midwives and Health Visitors, International Society of Nurses in Genetics, 2006, Invited paper, 19th Annual conference, New Orleans.
  • Tonkin, E10 and Kirk KM1. Genetics education for the nursing profession: identifying the needs of educators and practitioners, 2006, Poster, European Human Genetics Conference, Amsterdam.



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