It is well recognised that there is currently poor engagement and a knowledge-practice gap across the nursing profession in relation to genetics and genomics. Coupled with a lack of evidence to support the translation of genomics advances into nursing and a need to establish clinical outcomes for practice, these factors are limiting the translation of important scientific advances into mainstream care provision. In collaboration with Hillary Burton (PHG Foundation), Alastair Kent (Genetic Alliance) and Prof. Heather Skirton (Plymouth University), and funded by a University of Glamorgan (now USW) Research Infrastructure Support grant to Dr. Emma Tonkin, Emma and Prof. Maggie Kirk have held a meeting that set out to outline a set of prioritised themes that could be used to stimulate research in genetics/genomics that will lead to evidence based nursing interventions.
A 24hr stakeholder consensus meeting brought together representatives from nursing practice, policy and research. Using an interactive, workshop style event that included discussions, group work, voting and synthesis, participants agreed on four key themes where evidence is required.
Further detail was added to each theme and it is this information that we anticipate taking forward into future research projects. A manuscript is in preparation and funding is being sought to undertake further work.
Graphic illustration was used throughout the event to capture and stimulate discussion