Our aim is to make a significant contribution to professional preparation, public education, and ultimately to improvements in care through the use of genomics. We are doing this through our research, by generating new knowledge and applying that knowledge to policy developments in health, education and nursing leadership.
The GPU has two main strands of enquiry:
We have expertise in a number of areas including consensus techniques; development of competence frameworks and maturity matrix based assessment tools; the collection and use of patient/personal narrative; and the use of innovative approaches to work with hard-to-reach groups, in particular young-people.
One of our biggest achievements is the Telling Stories project; an award-winning, free to access, online education resource. Launched in 2007, the website was initially developed for nurses and midwives to help them to learn more about genetics and link their knowledge with everyday practice. We have since expanded it to support medical education. The site currently contains more than 100 personal stories (in a mixture of written and video format), from people living with or at risk of a genetic condition, family members and health professionals. It has been very well received nationally and internationally, with visitors from over 170 countries.
To access the free library of real life stories and all the supporting material, please visit the Telling Stories website or to find out more about the project, please visit our projects page and follow us on Twitter.
Current external links include:
Dr Rachel Iredale
Dr Emma Tonkin